Colon Cancer Family Registry

Allyson S. Templeton, M.S.
Fred Hutchinson Cancer Research Center
Seattle, Washington
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Ontario Familial Colorectal Cancer Registry

Principal Investigator
Steve Gallinger, M.D.
Samuel Lunenfeld Research Institute
Mount Sinai Hospital
Toronto, Ontario, Canada
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Co-Principal Investigator
Michelle Cotterchio, Ph.D.
Cancer Care Ontario
Toronto, Ontario, Canada
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Site Coordinator
Cary Greenberg.
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Collaborating Institutions
Cancer Care Ontario, Toronto, Ontario; Hamilton Regional Cancer Centre, Hamilton; Kingston Regional Cancer Centre, Kingston, London Regional Cancer Centre, London; Mount Sinai Hospital, Toronto; Northeastern Ontario Regional Cancer Centre, Sudbury; Northwestern Ontario Regional Cancer Centre, Thunder Bay; Ottawa Regional Cancer Centre, Ottawa; Toronto-Sunnybrook Regional Cancer Centre, North York, Ontario; Windsor Regional Cancer Centre, Windsor, Ontario; University of Newfoundland, Newfoundland

Stanford/USC Consortium

Principal Investigator
Robert Haile, Dr. P.H.
Stanford Cancer Institute
Stanford, California
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Co-Principal Investigator
Graham Casey, Ph.D.
University of Southern California
Los Angeles, California
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Site Coordinator
Lauren Gerstmann
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Collaborating Institutions
Arizona Cancer Center, Cleveland Clinic Foundation, Dartmouth College, University of Colorado, University of Minnesota, University of North Carolina, University of Southern California

Australasian Colorectal Cancer Family Study

Principal Investigator
Mark Jenkins, Ph.D.
The University of Melbourne
Carlton, Australia
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Co-Principal Investigator
John Hopper, Ph.D.
The University of Melbourne
Carlton, Australia
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Site Coordinator
Judi Maskiell, B.Health.Sc., Grad. Dip.
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Collaborating Institutions
The University of Melbourne, Victoria, Australia; Queensland Institute of Medical Research, Brisbane, Queensland, Australia; Royal Melbourne Hospital, Victoria, Australia; King Edward Memorial Hospital, Perth, Western Australia, Australia; Westmead Hospital, Sydney, New South Wales, Australia; Prince of Wales Hospital, Sydney, New South Wales, Australia; Women's and Children's Hospital, Adelaide, South Australia, Australia; University of Auckland, New Zealand; Victorian Cancer Registry, Melbourne, Victoria, Australia

Hawaii Family Registry of Colon Cancer

Principal Investigator
Loic Le Marchand, M.D., Ph.D.
University of Hawaii at Manoa
Manoa, Hawaii
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Site Coordinator
Terrilea Burnett, Ph.D.
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Mayo Colorectal Cancer Family Registry

Principal Investigator
Noralane Lindor, M.D.
Mayo Clinic
Rochester, Minnesota
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Co-Principal Investigator
Stephen Thibodeau, Ph.D.
Mayo Clinic
Rochester, Minnesota
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Site Coordinator
Joyce Borgen
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Seattle Familial Colorectal Cancer Registry

Principal Investigator
Polly A. Newcomb, Ph.D.
Fred Hutchinson Cancer Research Center
Seattle, Washington
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Site Coordinator
Douglass S. Fisher, M.A.
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Minutes

 

Next meeting

What Colon Cancer Family Registry Annual In-person Steering Committee Meeting
When September 4-5, 2014
Where Sheraton Kauai
Agenda To be determined
Background

The Colon Cancer Family Registry has served as an international resource for studies of the genetics and epidemiology of colorectal cancer (CRC) since 1997. It is the largest single family-based resource in the world for the study of CRC (and other cancers, such as endometrial cancer, that occur in these families).  The CCFR has supported and facilitated over 200 scientific projects, many including collaborations with other top CRC groups in the world, and has generated over 220 publications to date. This annual in-person meeting enhances the monthly one-hour Steering Committee and other working group conference calls.

These in-person meetings provide the opportunity for more in-depth discussions, break-out sessions, and concentrated impromptu meetings, all of which benefit the research agenda, scope of work, and the collaborative focus of the Colon Cancer Family Registry Cohort. Discussions focus on reviewing ongoing projects, updates on progress on the scope of work, brainstorming on novel scientific ideas and evaluation of opportunities for collaborating with other consortia as a group.  These meetings are also focused on the genesis and development of new grant proposals which complement and further the aims of the cohort.