Module: family-history

Module Contents

  1. individual

1CENTER_NOnumber (2,0)Required:true
Center Identification Number
Allowable Values
11Cancer Care Ontario
12USC Consortium
13University of Melbourne
14Cancer Research Center of Hawaii
15Mayo Clinic
16Fred Hutchinson, Seattle
17Northern California (NCCC)


2PERSON_ID (*PK)string (12)Required:true
Number that uniquely identifies an individual. Consists of concatenation of CENTER_NO (2 digit; digits 1-2) + (10 digit local unique individual id; digits 3-12). The 10 digit individual number component should be right justified, zero filled. Ex: Individual Id 98765 from Australia Colon Center should be: 130000098765. *This field is the primary key for the table.

3PERSON_CIDstring (30)Required:false
The external person ID (or concatenated set of IDs) that is local to the submitting center.

4MOTHER_IDstring (12)Required:false
Person identification number (PERSON_ID) of mother. Consists of concatenation of CENTER_NO (2 digit) + (10 digit local unique individual id). The 10 digit individual number component should be right justified, zero filled.

5FATHER_IDstring (12)Required:false
Identification number (PERSON_ID) of father.

6TWIN_IDstring (12)Required:false
Identification number (PERSON_ID) of the corresponding twin. Example: Persons 3 and 4 are twins. Person 3 = 02000008763 Person 4 = 02000008764 Example: Persons 3, 4, and 5 are triplets. Code as follows: Person 3 = 02000008763 Person 4 = 02000008764 Person 5 = 02000008765

7TWIN_TYPEnumber (1,0)Required:false
Type of twin.
Allowable Values
1Monozygous
2Dizygous
9Twin, type unknown


8SEXnumber (1,0)Required:true
Gender of the individual.
Allowable Values
1Male
2Female
9Unknown


9VSnumber (1,0)Required:true
Vital Status of individual.
Allowable Values
1Alive
2Dead
9Unknown

10LIVEDATEstring (8)Required:true
The most recent date a subject is known to be living. This is the last date the subject is known to be alive. There are multiple sources of information that can be used to obtain this date. Acceptable sources are listed in LIVEDATESRC. Upon notification of the death of the subject, the LIVEDATE should remain unchanged and VS should be updated to 2-dead and DTHDATE and DTHDATESRC, AGE_DEATH and AGE_DEATH_EST populated.
Date Value Check
The date must follow to the following format:

Format YYYYMMDD. Must consist of valid date.
Components of date should be right justified and zero filled.
MM = 01 - 12, 88, 99
DD = 01 - 31, 88, 99
YYYY = Minimum year - system date year, 8888, 9999
Use 88, 8888 for not currently known, in progress to obtain information.
Use 99, 9999 for not known.
If century is known, but year is unknown then give an estimate of year or code YYYY = 9999.
If MM = 99 then DD must = 99.
If century is known, but year is unknown then give an estimate of year or code YYYY = 9999.
If YYYY = 9999 then MM and DD must = 99.

The following special parameters are used:
Format YYYYMMDD
YYYY 1700 (Minimum year) - system date year, 8888, 9999
MM 01 - 12, 88, 99
DD 01 - 31, 88, 99



11LIVEDATESRCnumber (2,0)Required:true
Source of information for LIVEDATE
Allowable Values
1Self representation either by conducting a study activity in person, by telephone, or by mail. These could include completing a survey, signing a study document, providing a blood sample, etc
2Relative (or Respondent) report that a subject is living
3Linkage with national death indices, such as the NDI and NDI+, where the OMISSION of a subject presumes he/she is living (consensus advised).
4Linkage with state death indices, such as through the health department where the OMISSION of a subject presumes he/she is living (consensus advised)
5Linkage with another information source that reports an activity that indicates the subject is living, such as current use of social security benefits, credit report
6Hospital record, medical file that reports contact with or a procedure performed on subject.
7SEER, which reports the last date they know the subject is known to be alive.
8State Cancer registry, which reports the last date they know the subject to be alive.
9Other, for example specialized genealogy
99Unknown

12DTHDATEstring (8)Required:false
The date of death. There are multiple sources of information that can be used to obtain this date. Acceptable sources are listed in DTHDATESRC.
Date Value Check
The date must follow to the following format:

Format YYYYMMDD. Must consist of valid date.
Components of date should be right justified and zero filled.
MM = 01 - 12, 88, 99
DD = 01 - 31, 88, 99
YYYY = Minimum year - system date year, 8888, 9999
Use 88, 8888 for not currently known, in progress to obtain information.
Use 99, 9999 for not known.
If century is known, but year is unknown then give an estimate of year or code YYYY = 9999.
If MM = 99 then DD must = 99.
If century is known, but year is unknown then give an estimate of year or code YYYY = 9999.
If YYYY = 9999 then MM and DD must = 99.

The following special parameters are used:
Format YYYYMMDD
YYYY 1700 (Minimum year) - system date year, 8888, 9999
MM 01 - 12, 88, 99
DD 01 - 31, 88, 99

Error Description
If VS is 2 then DTHDATE must not be null
If VS is not 2 then DTHDATE must be null
Date of death must be equal to or after date of birth
LIVEDATE must be less DTHDATE


13DTHDATESRCnumber (2,0)Required:false
Source of information reporting subject is deceased
Allowable Values
1Relative (or Respondent) report of subject death
2Linkage with national death indices (e.g., NDI, NDI+)
3Linkage with another information source that reports termination of services due to death (e.g., social security benefits, medicare, medicaid).
4Hospital record, medical file that reports
5SEER
6State Cancer registry
7State Death Indices (e.g., through the health department)
8Death certificate
9Obituary
10Other (e.g., specialized genealogy research)
99Unknown

Error Description
If VS is not 2 then DTHDATESRC must be null
If VS is 2 then DTHDATESRC must not be null

14AGE_DEATHnumber (3,0)Required:false
Age at death. Coding for this field is based on SEER, NAACCR and ACoS guidelines.
Allowable Values
998Less than 1 year
999Unknown


15AGE_DEATH_ESTnumber (1,0)Required:false
Accuracy of age of death.
Allowable Values
1Exact
2Within 1 year
3Within 1+ to 5 years
4Within 5+ to 10 years
510 or more years
9Unknown

16DOBstring (8)Required:true
Date of birth.
Date Value Check
The date must follow to the following format:

Format YYYYMMDD. Must consist of valid date.
Components of date should be right justified and zero filled.
MM = 01 - 12, 88, 99
DD = 01 - 31, 88, 99
YYYY = Minimum year - system date year, 8888, 9999
Use 88, 8888 for not currently known, in progress to obtain information.
Use 99, 9999 for not known.
If century is known, but year is unknown then give an estimate of year or code YYYY = 9999.
If MM = 99 then DD must = 99.
If century is known, but year is unknown then give an estimate of year or code YYYY = 9999.
If YYYY = 9999 then MM and DD must = 99.

The following special parameters are used:
Format YYYYMMDD
YYYY 1700 (Minimum year) - system date year, 8888, 9999
MM 01 - 12, 88, 99
DD 01 - 31, 88, 99

Error Description
must be a valid date of format YYYYMMDD


17BIRESTnumber (1,0)Required:true
Accuracy of date of birth.
Allowable Values
1Exact
2Within 1 year
3Within 1+ to 5 years
4Within 5+ to 10 years
510 or more years
9Unknown


18INDIVSRCnumber (1,0)Required:true
Source of information for individual family member.
Allowable Values
0Self
11st degree relative
22nd degree relative
3Other relative
4Other
5Dummy record (i.e. dummy spouse or parent)
9Unknown


19BLOODnumber (1,0)Required:true
Status of blood specimen.
Allowable Values
0Not needed / not applicable
1Needed, but can't get (e.g. deceased, overseas, etc.)
2Needed, Pending
3Blood received
4Refusal from patient
6Sample lost or destroyed


20BUCCAL_SALIVAnumber (1,0)Required:false
Allowable Values
0Not needed, not applicable
1Needed, but cannot get (e.g. deceased, overseas, etc.)
2Needed, pending
3Buccal_Saliva received
4Refusal from patient
5Sample lost or destroyed


21EPI_Q_COLONnumber (1,0)Required:false
Status of colon epidemiology questionnaire.
Allowable Values
0Not needed / not applicable
1Needed, not requested yet
2Questionnaire requested, pending
3Questionnaire received, completed personally
4Questionnaire completed by proxy
5Refusal
6Needed but can't get (i.e. language, disability, etc.)
7Deceased


22COLON_1ST_FUnumber (1,0)Required:false
Status of the First Colon Follow Up questionnaire administered after the Baseline questionnaire.
Allowable Values
0Not needed / not applicable
1Needed, not requested yet
2Questionnaire requested, pending
3Questionnaire received
5Refusal
6Needed but can not get (i.e. language, disability, etc.)
7Deceased


23COLON_2ND_FUnumber (1,0)Required:false
Status of the Second Colon Follow Up questionnaire administered after the Baseline questionnaire.
Allowable Values
0Not needed / not applicable
1Needed, not requested yet
2Questionnaire requested, pending
3Questionnaire received
5Refusal
6Needed but can not get (i.e. language, disability, etc.)
7Deceased


24COLON_3RD_FUnumber (1,0)Required:false
Status of the Third Colon Follow Up questionnaire administered after the Baseline questionnaire.
Allowable Values
0Not needed / not applicable
1Needed, not requested yet
2Questionnaire requested, pending
3Questionnaire received
5Refusal
6Needed but can not get (i.e. language, disability, etc.)
7Deceased


25DIET_Q_HInumber (1,0)Required:false
Status of Hawaiian Diet Questionnaire.
Allowable Values
0Not needed / not applicable
1Needed, not requested yet
2Questionnaire requested, pending
3Questionnaire received
5Refusal
6Needed but can not get (i.e. language, disability, etc.)
7Deceased


26DIET_Q_AUSnumber (1,0)Required:false
Status of Australian diet questionnaire.
Allowable Values
0Not needed / not applicable
1Needed, not requested yet
2Questionnaire requested, pending
3Questionnaire received
5Refusal
6Needed but can't get (i.e. language, disability, etc.)
7Deceased


27CLINICAL_COLONnumber (1,0)Required:false
Consent for clinical data collected in clinical treatment module.
Allowable Values
0Not needed / not applicable
1Needed, can't get (hospital has no records/ correct hospital cannot be identified)
2Needed, pending consent
3Records received
4Consent received records pending
5Refused- consent
6Needed- but can't consent (lost contact/deceased, no proxy etc.)

Error Description
If CENTER_NO=17 then CLINICAL_COLON must be null
If CENTER_NO does not equal 17 then must not be null

28CANCER_FLGnumber (1,0)Required:false
Flag indicating status of cancer at the time of baseline.
Allowable Values
1Yes
2No
9Unknown


29RACE_SOURCEnumber (1,0)Required:false
Source of race/ethnicity information.
Allowable Values
1Epidemiology questionnaire self report
2Other questionnaire self report
3Epidemiology questionnaire proxy
4Other questionnaire proxy
5Cancer registry
6Other external source


30ADDITIONAL_RACE_COLONnumber (2,0)Required:false
Self reported Race/ethinicity from source(s) other than Epi or FUP Epi questionnaire. This includes race reported via other questionnaires such as family history questionnaire, information provided during blood/saliva collection, verbal information, etc. For consistency and comparability with the EPI or EPIFU RACE variables, only self reported information will be provided and only for those individuals who did not provide RACE information or did not complete Epi questionnaire.
Allowable Values
1CAUCASIAN/WHITE
2BLACK OR AFRICAN AMERICAN (does not include Africans or persons of Caribbean origin)
3Latino, Hispanic, Mexican American, Mexican, Cuban, Puerto Rican
4JAPANESE (includes Okinawan)
5CHINESE
6FILIPINO, MALAY, INDONESIAN
7KOREAN
8SOUTHEAST ASIAN (such as Vietnamese, Laotian, Thai, Hmong, Kampuchean)
9SOUTH ASIAN (such as Indian, Pakistani, Sri Lankan)
10NATIVE AMERICAN (such as Inuit, Aleutuan, First Nations Person)
11POLYNESIAN (such as Hawiian, Maori, Samoan, Tongan, Tahitian, Cook Islander)
12MICRONESIAN (such as Chmorro)
13AUSTRALIAN ABORIGINAL (such as Chmorro)
14MELANESIAN (such as Fijian, New Guinean)
15CARIBBEAN BLACK (such as Jamaican, Trinidadian, Tobagonian)
16CENTRAL/SOUTH AMERICAN (such as Costa Rican, Salvadorian, Colombian, Brazilian)
17BLACK AFRICAN
18NORTH AFRICAN (such as Egyptian, Algerian, Moroccan)
19MIDDLE EASTERN (such as Iranian, Lebanese, Kuwaiti, Saudi)
98OTHER
99DONT KNOW/REFUSED